Get Involved
Getting involved with others in the Coats' Disease community provides a sense of support, understanding, and shared determination to raise awareness and find new ways to support those affected by this rare eye condition.
Coats’ Ambassador Network (C.A.N.)
The Coats’ Ambassador Network (CAN) is a group of geographically-diverse volunteers – patients, parents, spouses, family members, friends, and supporters. The goals of the CAN are to raise awareness of Coats’ Disease in their communities, raise funds in their communities for research to find a cure, and support other patients and their loved ones so that no one travels the Coats’ journey alone.
The Jack McGovern Coats' Disease Foundation is proud to join forces with millions around the world living with a rare disease to celebrate Rare Disease Day®!
Learn More about how you can get involved!
August 17 has been recognized in 19 states as Coats’ Disease Awareness Day. Those states are California, South Dakota, Virginia, Wisconsin, Tennessee, Missouri, Texas, Louisiana, New Mexico, Arkansas, Indiana, Washington, South Carolina, Wyoming, Vermont, Georgia, North Dakota, Colorado, and Kentucky.
Are you interested in how to make that happen in your state? Click here to learn more!
The Mentor Program is a Patient-to-Patient Program for patients of any age (or Coats’ parents) to speak with a patient who has been living with Coats’ for several years. The program was suggested by Scott McCrady, a patient who was diagnosed at age 3 and is now 31, and a member of the CAN.
Connecting for a Cure: Host Your Own Event
Hosting a Connecting for a Cure event is a great way for members of the Coats’ Community to create their own awareness and fundraising events! Grassroots efforts, such as our successful Notes’ for Coats’ events, have helped spread awareness of Coats’ Disease and raise funds to enable us to continue building patient resources and supporting research! If you have an event idea, please contact us at contact@curecoats.org or check out this video on how to host your own event.
