Patient & Community Support
Patient & Family Contact Directory
Have you been looking to connect with fellow Coats’ patients and their families in your area? The Jack McGovern Coats’ Disease Foundation is pleased to announce the Coats’ Disease Patient and Family Contact Directory!
Ask Jack!
Whether you are a newly diagnosed patient, a parent with a child who has Coats’ Disease, or have been living with Coats’ Disease for a while, it’s nice to connect with others who have similar experiences and gain insight to their journeys. Jack McGovern, diagnosed at age 11, has been the face of the Foundation since its inception and he hopes this series will allow him to engage with patients and family members on a more intimate platform.
Mentor Program
The Coats’ Ambassador Network (CAN) is launching a Patient to Patient Mentor Program for patients of any age (or Coats’ parents) to speak with a patient who has been living with Coats’ for several years. The program was suggested by Scott McCrady, a patient who was diagnosed at age 3 and is now 31, and a member of the CAN.
COATS’ Ambassador Network (CAN)
The Coats’ Ambassador Network (CAN) is a group of geographically-diverse volunteers – patients, parents, spouses, family members, friends, and supporters. The goals of the CAN are to raise awareness of Coats’ Disease in their communities, raise funds in their communities for research to find a cure, and support other patients and their loved ones so that no one travels the Coats’ journey alone.
Video Library
We have a collection of expert and patient videos available.
Financial Resources
The Jack McGovern Coats’ Disease Foundation’s mission is to fund research into finding improved treatments and a cure for Coats’ Disease. While we are not in a position to support individual patients’ medical expenses directly, we do provide the following resources in which patients may find financial support for their treatment.
Raregivers
Raregivers™ is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities. We deliver daily compassion and relief to individuals who feel isolated and overwhelmed.
Raregivers™ is singularly focused on providing necessary mental health and wellness services to raregivers – from sustainable psychosocial training and transformative retreats to a connective peer-to-peer multilingual network. Raregivers currently supports over 20,000 rare families across 33 countries.
