Patient and Family Resources

  • Newly Diagnosed Info Packet

    Download an informational packet to help navigate a Coats’ Disease diagnosis

  • Brochure

    What should we know about the services you provide? Better descriptions result in more sales.

  • Doctor Directory

    A directory of doctors who are familiar with Coats’ Disease.

  • Patient & Family Contact Directory

    A Directory to all patients and families to connect with others.

  • Coats'-to-Coats' Mentor Program

    A program for patients of any age (or Coats’ parents) to speak with someone who has been living with Coats’ for several years.

  • Patient Registry

    The first and only Coats’ Disease Patient Registry allows medical researchers to tap into a pool of anonymized data on Coats’ Disease patients for their work.

  • Ask Jack!

    Jack McGovern, diagnosed at age 11, has been the face of the Foundation since its inception and he hopes this series will allow him to engage with patients and family members on a more intimate platform.

  • Coats' Ambassador Network (CAN)

    The Coats’ Ambassador Network (CAN) is a group of geographically-diverse volunteers who to raise awareness of Coats’ Disease in their communities, raise funds for research, and support other patients and families so that no one travels the Coats’ journey alone.

  • Video Library

    A collection of expert and patient videos, with topics varying from personal stories to research presentations.

  • Financial & Other Resources

    While we are not in a position to support individual patients’ medical expenses directly, we do provide the following resources in which patients may find financial support for their treatment.

  • Foundation Newsletter

    Stay up to date on the latest from the Jack McGovern Coats’ Disease Foundation

  • Become a Foundation Donor

    Many Coats' patients, families, researchers, and doctors will benefit from your support and we are so grateful for your choice to make a difference in the lives of all Coats' patients and their families.