About our Foundation

The Jack McGovern Coats’ Disease Foundation was founded in 2006 by the parents of Jack McGovern as a promise to their son that they would never rest until there was a cure for Coats’ Disease. To this end, the Foundation raises awareness and funds for research to improve treatments and, ultimately, to find a cure.

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FAQ

Common Questions about Coats’ Disease and Childhood Blindness

Recently diagnosed, or want to learn more information about Coats’ disease? We compiled answers to the most common questions.

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Get help

Find a doctor

It’s not easy to find a pediatric ophthalmologist who specializes in Coats’ disease. So, we found them for you.

Coats' facts ata glance

<200K

People In The U.S.

Are diagnosed with Coats' Disease. It is a rare disease that more often afflicts children...

4

Months

Is how young patients are diagnosed. Coats' Disease afflicts children more frequently but is also diagnosed in young adults...

69-75%

Of Coats' Patients Are Male

Coats' Disease is more often diagnosed in boys and young adult males. All patients will need to monitor the disease during their lifetime...

Get involved and give back.

We host annual events such as our golf tournament, 5K, and Virtual 5K to raise awareness and funds to support our mission. We welcome you to attend or participate in all of our events!

Rare Disease Day 2021

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