About our Foundation

The Jack McGovern Coats’ Disease Foundation was founded in 2006 by the parents of Jack McGovern as a promise to their son that they would never rest until there was a cure for Coats’ Disease. To this end, the foundation was started to raise funds in support of research to improve treatments and, ultimately, to find a cure.



Common Questions about Coats’ Disease and Childhood Blindness

Recently diagnosed, or want to learn more information about Coats’ disease? We compiled answers to the most common questions.


Get help

Find a doctor

It’s not easy to find a pediatric ophthalmologist who specializes in Coats’ disease. So, we found them for you.

Coats' facts ata glance

Fewer than 200,000 in the U.S.

Diagnosed with Coats' Disease

Coats' Disease is a rare disease that more often afflicts children

4 months to 30 years

Age of diagnosis

Coats' Disease afflicts children more frequently but is also diagnosed in young adults


Of all Coats' patients are male

Coats' Disease is more often diagnosed in boys and young adult males. All patients will need to monitor the disease during their lifetime.

Get involved and give back.

We throw annual events to raise awareness and funds to support our mission. We welcome you to attend an event that’s coming up, like our popular golf tournament in August of each year.

2018 Golf Tournament and Dinner – August 23

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