Connect with Others
Patient & Family Contact Directory
Have you been looking to connect with fellow Coats’ patients and their families in your area? The Jack McGovern Coats’ Disease Foundation is pleased to announce the Coats’ Disease Patient and Family Contact Directory!
Whether you are a newly diagnosed patient, a parent with a child who has Coats’ Disease, or have been living with Coats’ Disease for a while, it’s nice to connect with others who have similar experiences and gain insight to their journeys. Jack McGovern, diagnosed at age 11, has been the face of the Foundation since its inception and he hopes this series will allow him to engage with patients and family members on a more intimate platform.
The Coats’ Ambassador Network (CAN) is launching a Patient to Patient Mentor Program for patients of any age (or Coats’ parents) to speak with a patient who has been living with Coats’ for several years. The program was suggested by Scott McCrady, a patient who was diagnosed at age 3 and is now 31, and a member of the CAN.
COATS’ Ambassador Network (CAN)
The Coats’ Ambassador Network (CAN) is a group of geographically-diverse volunteers – patients, parents, spouses, family members, friends, and supporters. The goals of the CAN are to raise awareness of Coats’ Disease in their communities, raise funds in their communities for research to find a cure, and support other patients and their loved ones so that no one travels the Coats’ journey alone.
