EVENTS
Rare Disease Day
Feb. 28, 2025
The Jack McGovern Coats' Disease Foundation is proud to join forces with millions around the world living with a rare disease to celebrate Rare Disease Day®! Hosted on February 28, 2025, Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.
Coats' Disease is a rare disease. There is no cure, but we are diligently working to change that! Your support will allow us to raise awareness among pediatricians and physicians to help them recognize the warning signs of Coats' Disease, leading to earlier and more accurate diagnoses. The faster a patient is diagnosed, the greater the chance of saving their eyesight!
Your donation today will help us fund additional research for a cure and improved treatments, raise awareness to enable earlier diagnoses, and support patients and their families during their lifelong journey with Coats' Disease.
How else can you help? Here are some additional ways to celebrate the many Coats' Warriors we strive to help:
Download the Photo Templates, add your Coats' patient image, and share on your social media!
Share Your Story so that we can help spread the word about each Coats' patient's journey with Coats' Disease
Find a Rare Disease Day event near you!
Connecting for a Cure
This year, on Saturday, August 1, we invite you to support the fight against Coats’ Disease by hosting a gathering, party, or community event in your community.
Create an event of your choosing and invite your community, including family, friends, neighbors, doctors, and others! Ideas might include a picnic, a BBQ, a potluck supper,
a family gathering, a movie night, a formal dinner, or whatever suits your style! The type of event, including timing (day or night), is solely up to you!
The Foundation will provide a host package which includes:
• Printable posters and informational pages
• Awareness bracelets
• Logo pens
• Personalized website to share your story and event details
• Online auction for guests to explore
• Video from the Foundation to share with guests
• Suggested program guide
• Advice along the way!
Be a part of a worldwide event on August 19, right in your own community!
Join the Fight Against Coats’ Disease!