The Jack McGovern Coats' Disease Foundation is proud to join forces with millions
around the world living with a rare disease to celebrate Rare Disease Day®!
Hosted on February 29, Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.
Coats' Disease is a rare disease. There is no cure, but we are diligently working to change that! Your support will allow us to raise awareness among pediatricians and physicians to help them recognize the warning signs of Coats' Disease, leading to earlier and more accurate diagnoses. The faster a patient is diagnosed, the greater the chance of saving their eyesight!
WAYS TO GET INVOLVED
Our Coats' Community has shared some of the ways they celebrate Rare Disease Day in their families. Here are a few ideas to spark your creativity!
Wrap blue hydrangeas with zebra ribbon for their child's teachers.
Download and/or share classroom activities to help spread the word among a patient's classmates.
Choose books to read with your child and others that focus on Coats' Disease, vision impairment, or other rare diseases. Some suggestions include Adventures with Darian: A Pirate at Sea See and the bilingual book, El Pirata y su Parche Mágico.
Host a gathering or party in honor of your Coats' patient, celebrating THEM on this special day!
Find a Rare Disease Day event near you!
SPREAD THE WORD
Here are some additional ways to spread awareness about Coats' Disease for Rare Disease Day:
Download the Photo Templates, add your Coats' patient image, and share on your social media (be sure to tag us!).
Share Your Story so that we can help spread the word about each Coats' patient's journey with Coats' Disease.
Please consider Making a Donation to honor the special Coats' patient in your life!
Find additional resources directly from the NORD website and Show Your Stripes!
Explore other ways to get involved on Rare Disease Day through the EveryLife Foundation for Rare Disease.
