The Jack McGovern Coats’ Disease Foundation funds research to find a cure for Coats’ Disease and pediatric retinal Disease. The Foundation is the preeminent resource for Coats’ Disease patients and their families, serving as a hub for the Coats’ Disease community who seek information about specialists who treat this rare disease and updates on the latest research in this disorder. 

Your generous gift to Jack McGovern Coats’ Disease Foundation enables us to:

  • Sponsor events to raise awareness.
  • Engage a network of volunteers around the world to help us achieve our mission.
  • Offer grants that encourage researchers to explore the causes and search for a cure of Coats’ Disease.
  • Endow scholarships to Ophthalmologists to inspire them to specialize in Coats’ Disease and other rare eye disorders.
  • Donate money for research to improve treatments and to find a cure. See the announcement about our recent gift to the Wilmer Eye Institute.
  • Create and maintain a comprehensive directory of Coats’ Disease specialists.
  • Expand the Patient Registry as a source of comprehensive, accessible data for researchers.

Thank you for supporting our relentless effort to find a cure for Coats’ Disease!



When doctors are not familiar with the symptoms of Coats’ Disease, this may lead to an incorrect diagnosis which delays treatment or, worse, leads to the removal of the eye.

Recently, we announced our Travel Grant Program, a $10,000 fundraising effort that sends five (5) Pediatric Retina Fellows and Specialists to conferences this year, such as the Association for Research in Vision and Ophthalmology and the Advances in Pediatric Retina conference. And so far, we’re off to a great start — raising $8,000! We want to thank all those in our community who have been able to make a donation.

GREAT NEWS! Based on the number of qualified applicants received this round, we have decided to increase the number of grants to eight (8) and have increased our fundraising goal to $16,000. We are already halfway there! With a new goal of raising an additional $8,000, we can fulfill even more requests for support to attend these important conferences.

Your support of the Travel Grant Program is critical to help medical professionals learn more about Coats’ Disease. This will lead to:

  • Raised Awareness of Coats’ Disease
  • Correct Diagnosis, leading to faster treatment
  • Improved Treatment Options
  • Finding a Cure

Thank you for being such an important member of our Foundation. Your gift will enable us to continue our mission of finding a cure for Coats’ Disease and offer all patients hope and improvements as they wage a lifelong battle against Coats’ Disease and blindness.

Thank you for helping us meet our goal!

Donate Now


Did you know that your everyday shopping can benefit the Jack McGovern Coats’ Disease Foundation? It’s easy! All you need to do is select Jack McGovern Coats’ Disease Foundation when you shop at AmazonSmile (or use the link below!).


Sammie’s Story

“On 11/11/11, we took our son, Sammie, to the eye Dr. for a wandering eye. I had prepared myself that we were going to leave with a patch. Not having a clue what was coming. We took all 3 boys with us and ended up being there almost 2 hours. We left uneasy. With one of two things. Either Sam had Coats Disease or Retinoblastoma cancer. Talk about a heavy heart. We couldn’t get into see the specialist until the next week {5 days} who then told us he would need to do a more thorough exam under anesthesia and Sam would need an MRI to rule out the cancer. This all took place the day after Thanksgiving. So much to be thankful for that year. Written by his mom, Jennie Howard

Read More about Sammie’s Story…




We want to hear from you! Submit your Coats’ story by submitting your journey on our website.