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The Jack McGovern Coats’ Disease Foundation funds research to find a cure for Coats’ Disease and pediatric retinal Disease. The Foundation is the preeminent resource for Coats’ Disease patients and their families, serving as a hub for the Coats’ Disease community who seek information about specialists who treat this rare disease and updates on the latest research in this disorder. 

Your generous gift to Jack McGovern Coats’ Disease Foundation enables us to:

  • Sponsor events to raise awareness.
  • Engage a network of volunteers around the world to help us achieve our mission.
  • Offer grants that encourage researchers to explore the causes and search for a cure of Coats’ Disease.
  • Endow scholarships to Ophthalmologists to inspire them to specialize in Coats’ Disease and other rare eye disorders.
  • Donate money for research to improve treatments and to find a cure. See the announcement about our recent gift to the Wilmer Eye Institute.
  • Create and maintain a comprehensive directory of Coats’ Disease specialists.
  • Expand the Patient Registry as a source of comprehensive, accessible data for researchers.

 

Thank you for supporting our relentless effort to find a cure for Coats’ Disease!

 

Sammie’s Story

“On 11/11/11, we took our son, Sammie, to the eye Dr. for a wandering eye. I had prepared myself that we were going to leave with a patch. Not having a clue what was coming. We took all 3 boys with us and ended up being there almost 2 hours. We left uneasy. With one of two things. Either Sam had Coats Disease or Retinoblastoma cancer. Talk about a heavy heart. We couldn’t get into see the specialist until the next week {5 days} who then told us he would need to do a more thorough exam under anesthesia and Sam would need an MRI to rule out the cancer. This all took place the day after Thanksgiving. So much to be thankful for that year. Written by his mom, Jennie Howard

Read More about Sammie’s Story…

 

 

 

We want to hear from you! Submit your Coats’ story by submitting your journey on our website.


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