Our vision is to find a cure for Coats’ Disease, a rare eye disorder that can cause blindness.

August 17th is Coats’ Disease Awareness Day! We ask that you help us get one step closer to finding a cure by making a donation to bring awareness to Coats’ Disease. We want to hear from you! Submit your Coats’ story by submitting your journey on our website.

Sammie’s Story

“On 11/11/11, we took our son, Sammie, to the eye Dr. for a wandering eye. I had prepared myself that we were going to leave with a patch. Not having a clue what was coming. We took all 3 boys with us and ended up being there almost 2 hours. We left uneasy. With one of two things. Either Sam had Coats Disease or Retinoblastoma cancer. Talk about a heavy heart. We couldn’t get into see the specialist until the next week {5 days} who then told us he would need to do a more thorough exam under anesthesia and Sam would need an MRI to rule out the cancer. This all took place the day after Thanksgiving. So much to be thankful for that year. Written by his mom, Jennie Howard

Read More about Sammie’s Story…

Your generous donation enables us to:

  • Sponsor events to raise awareness.
  • Engage a network of volunteers around the world to help us achieve our mission.
  • Offer grants that encourage researchers to explore the causes of Coats’ Disease.
  • Endow scholarships to Ophthalmologists to inspire them to specialize in Coats’ Disease and other rare eye disorders.
  • Donate money for research to improve treatments and to find a cure. See the announcement about our recent gift to the Wilmer Eye Institute.
  • Create and maintain a comprehensive directory of Coats’ Disease specialists.
  • Expand the Patient Registry as a source of comprehensive, accessible data for researchers.

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