Lavesha Owens

Lavesha is a relatively new member of the Jack McGovern Coats' Disease Foundation's Coats' Ambassador Network. She hit the ground running, however, with her efforts making an immediate impact by contributing to the success of Notes for Coats' and offering valuable input during meetings.

We caught up with Lavesha to learn more about her and why the Coats' Ambassador Network is important to her...

๐–๐ก๐š๐ญ ๐ข๐ฌ ๐ฒ๐จ๐ฎ๐ซ ๐œ๐จ๐ง๐ง๐ž๐œ๐ญ๐ข๐จ๐ง ๐ญ๐จ ๐‚๐จ๐š๐ญ๐ฌโ€™ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž?
My son, Aaron, was diagnosed with Coats' Disease in 1994.

๐–๐ก๐ฒ ๐๐ข๐ ๐ฒ๐จ๐ฎ ๐ฃ๐จ๐ข๐ง ๐‚๐€๐?
I joined CAN to support and engage with other families experiencing Coats' Disease.

๐‹๐จ๐จ๐ค๐ข๐ง๐  ๐š๐ก๐ž๐š๐, ๐ฐ๐ก๐š๐ญ ๐š๐ซ๐ž ๐ฒ๐จ๐ฎ๐ซ ๐ก๐จ๐ฉ๐ž๐ฌ ๐Ÿ๐จ๐ซ ๐‚๐€๐?
For the medical field to call more attention to the experiences and needs of Coats' patients. Also to fund more research towards this disease.

๐‹๐จ๐จ๐ค๐ข๐ง๐  ๐š๐ก๐ž๐š๐, ๐ฐ๐ก๐š๐ญ ๐š๐ซ๐ž ๐ฒ๐จ๐ฎ๐ซ ๐ก๐จ๐ฉ๐ž๐ฌ ๐Ÿ๐จ๐ซ ๐‚๐€๐?
For the medical field to call more attention to the experiences and needs of Coats' patients. Also to fund more research towards this disease.

๐–๐ก๐š๐ญ ๐ค๐ข๐ง๐๐ฌ ๐จ๐Ÿ ๐ญ๐ก๐ข๐ง๐ ๐ฌ ๐๐จ ๐ฒ๐จ๐ฎ ๐๐จ ๐ฐ๐ก๐ž๐ง ๐ฒ๐จ๐ฎ ๐š๐ซ๐ž ๐ง๐จ๐ญ ๐ฏ๐จ๐ฅ๐ฎ๐ง๐ญ๐ž๐ž๐ซ๐ข๐ง๐  ๐ญ๐จ ๐ซ๐š๐ข๐ฌ๐ž ๐š๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐จ๐Ÿ ๐‚๐จ๐š๐ญ๐ฌโ€™?
My food truck and church activities.

๐–๐ก๐จ ๐ข๐ง๐ฌ๐ฉ๐ข๐ซ๐ž๐ฌ ๐ฒ๐จ๐ฎ?
My son, Aaron. While he has Coats' Disease and epilepsy, he still works full time and is devoted to Gods' kingdom.

๐–๐ก๐š๐ญโ€™๐ฌ ๐ฌ๐จ๐ฆ๐ž๐ญ๐ก๐ข๐ง๐  ๐š๐›๐จ๐ฎ๐ญ ๐ฒ๐จ๐ฎ ๐ญ๐ก๐š๐ญ ๐ง๐จ๐ญ ๐ฆ๐š๐ง๐ฒ ๐ฉ๐ž๐จ๐ฉ๐ฅ๐ž ๐ค๐ง๐จ๐ฐ?
I wish I could split myself into two, thus having more time to advocate for Coats' Disease!

๐ƒ๐จ ๐ฒ๐จ๐ฎ ๐ก๐š๐ฏ๐ž ๐š ๐ฆ๐ž๐ฌ๐ฌ๐š๐ ๐ž ๐ฒ๐จ๐ฎโ€™๐ ๐ฅ๐ข๐ค๐ž ๐ญ๐จ ๐ฌ๐ก๐š๐ซ๐ž ๐ฐ๐ข๐ญ๐ก ๐‚๐จ๐š๐ญ๐ฌโ€™ ๐ฉ๐š๐ญ๐ข๐ž๐ง๐ญ๐ฌ?
Yes - Coats' Disease can be a stumbling block, but it also is special. It invites you into a diverse group of loving, determined people, all fighting for such a lovely cause. Iโ€™m blessed to be a member.