Contact Us

Questions about the foundation? Need to find a doctor for a second opinion? Curious to connect to other families? We are here to help you.

For patients, families, and others.  Send us an email.
For legal and financial matters.

 

To speak with us.

Send us a letter:
20 Park Road, Suite E
Burlingame, CA 94010

888/314-8853

For doctors and researchers. Send us an email.