Eva’s Story: In May 2017, my son (age 7) was due for a checkup at the optician. While there, I asked the optician if it would be worth getting my daughter Eva’s (age 3) eyes tested. I thought if she needed glasses and figured it would be better if she had them early on. The […]


Ian’s Story: A letter came home. My soon to be four-year-old failed an eye screen at school, but just in one eye. “Does he know his alphabet?” the screener asked. “He can read,” responds his teacher. I call all the doctors they gave me to get an appointment as soon as possible. After all, I’m […]

Jeff T.

Jeff’s Story: When I was 8, I remember playing in the front yard when one of my eyes was “blinking” without me blinking my eye. I remember being sort of scared, so I ran to my Mother and explained to her what was happening. At first she didn’t believe me, but I kept complaining that I […]

Oliver N.

Oliver’s Story: It was October 2017 and my husband was getting our 2-year-old son, Oliver, ready for bed. He shouted for me, saying “Jo, come look at this!” I felt sick as soon as I saw it. By laying directly under the ceiling light in his bedroom I could, what I can only describe, as ‘see […]


Oliver’s story: Oliver had just turned 3 when in November 2016 his key worker at nursery noticed right eye wandering, especially when he was tired or concentrating. An appointment was made with the GP who wasn’t able to see this happen but thankfully made a referral to an ophthalmologist. The appointment wasn’t until February 2017 […]

Scott McCrady

“My name is Scott Jerome McCrady and I was diagnosed with Coats’ disease when I was 5 years old and couldn’t pass my elementary school eye exam. My parents took me to an optometrist and then a retinal specialist in my home town. The retinal specialist suspected Coats’ disease and referred us to a specialist […]


“I was diagnosed with Coats disease when I was 11 years old. The yearly eye sight and hearing screening at school is who tipped my parents off that something was aloof with my vision. Personally I knew my vision wasn’t great in my left eye but I was so worried about having to wear glasses […]


“When I was about eleven, I realized I did not have full vision in my right eye. I remember being with my friend Stacy and asking each other eye doctor questions (“what do you see when you cover your left eye” kind of stuff). I cannot remember if I immediately told my mom or if […]


“My name is Sherry De La Torre. I am 35 years old, married with three children, living in Santa Rosa, California. I found my best friend at age 14 and we have been together since graduating high school in 1995. We had our daughter in September 1996, married in February 1998, then we had our […]


“It has been a long time since I have gone in depth about my eye and Coats Disease. A lot of my friends don’t even know I have this disease. I did not know what to expect at the Jack McGovern Coats Disease Foundation conference in San Francisco, CA. What came out of it was […]