Oliver N.

Oliver’s Story: It was October 2017 and my husband was getting our 2-year-old son, Oliver, ready for bed. He shouted for me, saying “Jo, come look at this!” I felt sick as soon as I saw it. By laying directly under the ceiling light in his bedroom I could, what I can only describe, as ‘see […]

Oliver

Oliver’s story: Oliver had just turned 3 when in November 2016 his key worker at nursery noticed right eye wandering, especially when he was tired or concentrating. An appointment was made with the GP who wasn’t able to see this happen but thankfully made a referral to an ophthalmologist. The appointment wasn’t until February 2017 […]

Scott McCrady

“My name is Scott Jerome McCrady and I was diagnosed with Coats’ disease when I was 5 years old and couldn’t pass my elementary school eye exam. My parents took me to an optometrist and then a retinal specialist in my home town. The retinal specialist suspected Coats’ disease and referred us to a specialist […]

Nathan

“I was diagnosed with Coats disease when I was 11 years old. The yearly eye sight and hearing screening at school is who tipped my parents off that something was aloof with my vision. Personally I knew my vision wasn’t great in my left eye but I was so worried about having to wear glasses […]

Karen

“When I was about eleven, I realized I did not have full vision in my right eye. I remember being with my friend Stacy and asking each other eye doctor questions (“what do you see when you cover your left eye” kind of stuff). I cannot remember if I immediately told my mom or if […]

Sherry

“My name is Sherry De La Torre. I am 35 years old, married with three children, living in Santa Rosa, California. I found my best friend at age 14 and we have been together since graduating high school in 1995. We had our daughter in September 1996, married in February 1998, then we had our […]

Chris

“It has been a long time since I have gone in depth about my eye and Coats Disease. A lot of my friends don’t even know I have this disease. I did not know what to expect at the Jack McGovern Coats Disease Foundation conference in San Francisco, CA. What came out of it was […]

Sammie

Written by his mom, Jennie Howard. “On 11/11/11, we took our son, Sammie, to the eye Dr. for a wandering eye. I had prepared myself that we were going to leave with a patch. Not having a clue what was coming. We took all 3 boys with us and ended up being there almost 2 […]

Tyler

Written by his mother and advisory board member, Nancy Payton, about her son Tyler. “My son Tyler was diagnosed in January 2012 with Coats Disease. Never heard of it? Most people, even physicians, have not. It is an extremely rare, progressive eye disease that leads to vision loss / blindness. There is little to no […]

Jaxon

Advisory board member, Elke Gibbs, and her family have been an incredible inspiration to us here at JMCDF. Below, Elke recounts her son Jaxon’s struggle with Coats and how they have been working with us to raise awareness around Coats Disease. “When our son Jaxon was diagnosed on December 30, 2011, he was 2 years. […]