Noa, my son, recently was diagnosed with Coats’ Disease. We don’t know much about this disease and we are pretty scared. We are from Croatia and we were told Noa is only child with Coats’ Disease in our country! Noa is fully blind in his right eye and his retina is totally detached. The doctor told us that is only matter of time before pain will start and Noa’s eye will need to be removed. I am hoping for a miracle in that he never feels any pain and I am searching for anything that could help us. We are seeking another opinion and looking to stories of other patients and families for hope.