Carrie
My name is Carrie Hopkins and I am from Hagerstown, Maryland. I was diagnosed with Coats’ Disease when I was just nine years old. I was in the fourth grade when my school performed the standard hearing and vision tests. I first noticed that I couldn’t see the “barn” in my left eye. After a […]
Eli
On September 1, 2021, our lives got turned upside down. My husband and I were talking in the morning and we both had mentioned that we were seeing a glow or white light in our 18-month-old son’s eye lately. We knew we had a pediatrician appointment for that afternoon and we figured we would bring […]
Noa
Noa, my son, recently was diagnosed with Coats’ Disease. We don’t know much about this disease and we are pretty scared. We are from Croatia and we were told Noa is only child with Coats’ Disease in our country! Noa is fully blind in his right eye and his retina is totally detached. The doctor […]
Kingston
On June 15, 2020, our son Kingston was diagnosed with Coats’ Disease. It all started with a glow in his eye when he was six months old. We immediately made an appointment with his primary doctor and were referred to an eye specialist. On June 15, we were told he had Coats’ Disease and we […]
Diaz
It all started back in 2004, when my son Diaz was 4 years old. He was playing with his cousins at my sister’s house and my sister noticed that he was squinting. I didn’t think much about it and scheduled an appointment at the ophthalmologist the following week. During that week, he kept on squinting […]
Jessica
Hi, my name is Jessica. I’m 35 years old and I was diagnosed with Coats’ Disease when I was two years old. Originally, doctors thought I had a tumor behind my eye, but upon further evaluation they determined it was Coats’ Disease. I had to undergo surgery at the age of two to reattach my […]
Marah
Hello, my name is Marah. I am 21 years old from Bethlehem, Palestine. I was diagnosed with Coats’ Disease in my left eye when I was six years old. Luckily, it was only on Stage 2 so I was treated quickly to prevent any progression of the disease. As I remember, I was treated with […]
Kaydn’s Story
Kaydn was born six weeks early, in May of 2018. He spent his first nine days in the neonatal intensive care unit in Sioux Falls, SD. Despite being born premature, Kaydn left the hospital completely healthy and spent the first six months developing normally, just as a child would. This all changed on December 19th, […]
