Blake

My fiancé, Blake, was diagnosed with Coats’ Disease at a very young age. This led to Blake having his right eye surgically removed in 2000, at the young age of just eight years old. Since that surgery, Blake has had multiple glass eyes, as he (and his eye socket) grew.  Today, Blake is 27 years […]

Ashley

In June of 2019, at 15 years old, Ashley was diagnosed with Coats’ Disease in her right eye by Dr. R. Sisk at the Cincinnati Eye Institute. Ashley has undergone four laser surgery procedures. After her last procedure in November 2019, her test showed she has lost the far peripheral vision on the nose side. […]

Braydan

My son, Braydan, is nine months old. When he was just four months old, our world came to a screeching halt. At two months old, our pediatrician referred us to PT for  what she thought was torticollis. After three sessions with the PT, she referred us to an ophthalmologist following a hunch that something “was […]

Mason

This is our bright, bubbly, energetic, funny, joyful, and handsome son, Mason. When he was four weeks old, we started to recognize something seemed a bit off. He was not meeting developmental bench marks appropriate for his age and did not respond to us the way one would think a new baby would respond to […]

Uriel

Our journey with Coats’ Disease began in May of 2018. I had started noticing that my son’s eye would wander off, so I immediately took him to his pediatrician and she referred me to an eye doctor. The wait to get into the eye clinic was two months, as was the case for most of […]

Matthew

Saturday, October 12. It was a normal day and Matthew was playing. Adam, my husband and his dad, noticed for a split second that Matthew had a haze over his right eye, but after that we couldn’t really see it in different types of light. So, we played a game with Matthew by covering his […]

Ethan

This picture. THIS PICTURE! If only I had known about “the glow” when I took this picture. We had just changed the lighting in our living room the morning and I took pictures for our family Christmas cards. Why does Ethan’s eye have this odd glow? These damn lights. I was convinced that the new […]

Malaki

In February of 2017, my 5-year-old son, Malaki, went in for a routine eye exam where we lived in Illinois. When his exam was finished, we were informed that he needed to be referred to a specialist, as something was wrong with the retina of his right eye. As a parent, I became very concerned […]

Sydney

My name is Sydney. I am 24 years old and I was diagnosed with Coats’ at the age of 4. My mom first realized something was wrong when we went to the movies to see Tarzan. I was playing behind the seats and I asked her “Hey mom, which eye do you see out of?” […]

Pablo

I was diagnosed with coats disease when I was 14 years old. One day I noticed there was a black spot in the middle of my right eye when I would look out through it. So, I told my parents and they took me the our general doctor. Our doctor checked my eye out and […]