My name is Carrie Hopkins and I am from Hagerstown, Maryland. I was diagnosed with Coats’ Disease when I was just nine years old. I was in the fourth grade when my school performed the standard hearing and vision tests. I first noticed that I couldn’t see the “barn” in my left eye. After a […]


On September 1, 2021, our lives got turned upside down. My husband and I were talking in the morning and we both had mentioned that we were seeing a glow or white light in our 18-month-old son’s eye lately. We knew we had a pediatrician appointment for that afternoon and we figured we would bring […]


Noa, my son, recently was diagnosed with Coats’ Disease. We don’t know much about this disease and we are pretty scared. We are from Croatia and we were told Noa is only child with Coats’ Disease in our country! Noa is fully blind in his right eye and his retina is totally detached. The doctor […]


My name is Ryan Stach and I am 25 years old. I was diagnosed with Coats’ Disease when I was seven. After going through six laser eye surgeries the following two years, the Coats’ in my right eye went into remission. By the age of 18, my superior vision had been worn down from the […]


On June 15, 2020, our son Kingston was diagnosed with Coats’ Disease. It all started with a glow in his eye when he was six months old. We immediately made an appointment with his primary doctor and were referred to an eye specialist. On June 15, we were told he had Coats’ Disease and we […]


It all started back in 2004, when my son Diaz was 4 years old. He was playing with his cousins at my sister’s house and my sister noticed that he was squinting. I didn’t think much about it and scheduled an appointment at the ophthalmologist the following week. During that week, he kept on squinting […]


Hi, my name is Jessica. I’m 35 years old and I was diagnosed with Coats’ Disease when I was two years old. Originally, doctors thought I had a tumor behind my eye, but upon further evaluation they determined it was Coats’ Disease. I had to undergo surgery at the age of two to reattach my […]


Hello, my name is Marah. I am 21 years old from Bethlehem, Palestine. I was diagnosed with Coats’ Disease in my left eye when I was six years old. Luckily, it was only on Stage 2 so I was treated quickly to prevent any progression of the disease. As I remember, I was treated with […]

Kaydn’s Story

Kaydn was born six weeks early, in May of 2018. He spent his first nine days in the neonatal intensive care unit in Sioux Falls, SD. Despite being born premature, Kaydn left the hospital completely healthy and spent the first six months developing normally, just as a child would. This all changed on December 19th, […]


I am a single mother with two sons and we are from the beautiful island of the Philippines. My younger son, James, has Coats’ Disease. James is 8 years old and it was only August 2019 last year (a few days before his actual birthday on the 25th), that my son informed me that he […]