Eurodis, the voice of Rare Disease in Europe, marks the last day of February of each year as “Rare Disease Awareness Day”. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Coats Disease impacts patients lives in a very real way every single day. As a rare disorder characterized by abnormal development of the blood vessels in the retina, Coats Disease can cause vision impairment and, in severe cases, retinal detachment.
In almost all cases of Coats disease, only one eye is affected. Rarely, both eyes may be exhibit symptoms. The specific cause of Coats disease is not yet known. The Jack McGovern Coats Disease Foundation is working to solve that by funding research to figure out the cause of Coats Disease and, one day, the cure.
The Rare Disease Day campaign started as a European event, and it has progressively become a world phenomenon. Participation has hit a record-breaking 84 countries around the world in 2014. Eurodis’s objective is for the World Health Organization to recognize the last day of February as the official Rare Disease Day and to raise increasing awareness for Rare Diseases worldwide. Let’s help them achieve this mission.