Jack McGovern Coats’ Disease Foundation Donates Funds For Research


Jack McGovern Coats’ Disease Foundation establishes national tissue biobank at the Wilmer Eye Institute at Johns Hopkins

Non-profit donates funds to support research on rare eye disorder that causes blindness.

Burlingame, CA, January 5, 2018:  The Jack McGovern Coats’ Disease Foundation, a charitable organization that seeks to find a cure for a rare eye disorder that can cause blindness in children and adults, announced that it has made a gift to establish the Jack McGovern Coats’ Disease Foundation National Tissue Biobank at the Wilmer Eye Institute at Johns Hopkins in Baltimore, Maryland. The biobank will facilitate research on the causes of, and the most effective treatments of, Coats’ Disease with the goal of finding a cure for the disorder, which impacts the retina and has been diagnosed in children as young as four months old.

“Our mission at the Jack McGovern Coats’ Disease Foundation is to find a cure for Coats’ Disease,” said Foundation President, Suzanne Levere. “Creating a tissue biobank with the internationally-renowned Wilmer Eye Institute is a major step in realizing that goal. We raise funds to fund research. We are very excited about the research that will be made possible by this gift.”

The Jack McGovern Coats’ Disease Foundation was formed in 2006 by Tina and Ed McGovern in the name of their son, Jack, who was diagnosed with Coats’ Disease when he was ten. Despite partial loss of sight in one eye, Jack benefitted from prompt and excellent medical care. He was a successful student-athlete, playing lacrosse for four years at the Division I collegiate level, and earning his bachelor’s degree from Holy Cross in 2017. The Foundation is the preeminent source for information and resources to help educate and support families in their fight against Coats’ Disease. www.coatsdiseasefoundation.org

2 thoughts on “Jack McGovern Coats’ Disease Foundation Donates Funds For Research”

  1. Laure McClellan says:

    My daughter, 25 years old was diagnosed with Coates. She has it in both eyes. Do you know if there is any research on this disease and if there is someone we can contact. At this time is has loss vision in the right eye. The left eye is active but she still has vision. Any info would be greatly appreciated.
    Thanks so much!
    Laure McClellan

    1. Sarah Kopac says:

      Dear Laure,

      Thank you for reaching out. We do have some published research articles on our website that you may find helpful. You can locate them here: https://coatsdiseasefoundation.org/research/research-articles/

      We also strongly recommend adding your daughter to the Patient Registry where her anonymous information can be shared with researchers who are dedicated to learning more about Coats’ Disease.

      If you haven’t already shared her story, we’d love to hear more about your daughter’s Coats’ Disease journey. You can click here to submit her story.

      If you would like to explore a second opinion, our Doctor Directory may have someone in your area that has experience in Coats’ Disease. You can also nominate her physician for the directory.

      Please feel free to reach out with any other questions!

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