Executive Director’s Message To The Coats’ Community

Welcome to the Jack McGovern Coats’ Disease Foundation community!

We are excited about the year ahead as we work to find a cure for Coats’ Disease. We continue to serve as the preeminent resource for patients, families, retina specialists, and researchers who seek to improve upon treatments and to find a cure for Coats’ Disease. We are proud of our role in creating an online network and serving as the hub of the Coats’ Community where patients and families can share stories and advice on living with Coats’ Disease.

Here are some of our goals for this year:

  • Foster Coats’ communities and sponsor events from coast to coast to increase awareness.
  • Partner with other organizations that focus on rare eye disorders to promote accurate diagnoses, in-depth research, and effective treatments.
  • Create awareness of this disease at the state government level to declare August 17 (Jack McGovern’s birthday) as Coats’ Disease Awareness Day in every state and sponsor events around the country. (This year marks 110 years since Dr. Coats first identified the disease.)

Our mission is to find a cure for Coat’s Disease.  We are working to raise funds to fund research. We are pleased to announce that the Foundation just made a gift to the Wilmer Eye Institute, Johns Hopkins Medicine, to establish the Jack McGovern Coats’ Disease Foundation National Tissue Biobank to facilitate research on this rare disease which can cause blindness.

I hope that you will find this website informative and that it will inspire you to get involved. If you would like to help us fulfill our mission to cure Coats’ Disease, please contact me at [email protected]

Best wishes,


Deborah J. Marron, Ed.D.
Executive Director,
Jack McGovern Coats’ Disease Foundation
[email protected]