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Help us Shine a Spotlight on Coats’ Disease!

When doctors are not familiar with the symptoms of Coats’ Disease, this may lead to an incorrect diagnosis which delays treatment, or worse, leads to the removal of the eye. Recently, we announced our Travel Grant Program, a $10,000 fundraising effort that sends five (5) Pediatric Retina Fellows and Specialists to conferences this year, such as […]


What makes NFL player Olivier Vernon support our Foundation?

Thank you to New York Giants’ Olivier Vernon for supporting the Jack McGovern Coats’ Disease Foundation through My Cause, My Cleats. His continued support year after year is helping to raise awareness of Coats’ Disease! If you can, please take a minute to read this article about why our Foundation is close to his heart. […]


January 2019 Newsletter

Click here to download the January newsletter from the Jack McGovern Coats’ Disease Foundation! January 2019 Newsletter  


Happy New Year!

Happy New Year from the Jack McGovern Coats’ Disease Foundation! Dear Friends, As we reflect back on our efforts in 2018 to increase the impact of the Jack McGovern Coats’ Disease Foundation, we are so grateful for the support of our Coats’ families, friends, and patients around the globe! Together, we have made progress in […]


First Annual 5K/1K Cure Coats’ Run

Check out video from this past October’s 5k/1K Cure Coats’ Run! We can’t wait until next year’s event – stay tuned for more info!  


New Study Finds Orphan Drug Exclusivity Working as Intended

New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs


National Tissue Biobank – A message from the director, Dr. Akrit Sodhi

Hear Dr. Akrit Sodhi present the latest in research for finding a cure for Coats’ Disease The Jack McGovern Coats’ Disease Foundation Board is pleased to announce our continued commitment to fund the expenses related to tissue collection by donating $25,000 this year to the Wilmer Eye Institute, establishing the Jack McGovern Coats’ Disease Foundation […]


Images from the 2018 Golf Tournament

Check out photos from the 2018 Jack McGovern Coats’ Disease Foundation Golf Tournament! Thank you to all who joined us on August 23, 2018 in the fight in finding a cure for Coats’ Disease!


UPDATE YOUR INFORMATION: And, nominate others!

UPDATE YOUR INFORMATION: And, nominate others! ________ The Jack McGovern Coats’ Disease Foundation is proud to announce new updates to our website. Since 2006, the Foundation has made great strides in raising awareness and funding pivotal research to better understand and treat this rare disease. With our new website, we’ve introduced a range of new […]


1st Annual Cure Coats’ 5K Run & 1K Kids Fun Run

Join us on Sunday, October 21, 2018 at 9:00 a.m. at Sierra Point Marina in Brisbane, CA, for our first ever run/walk fundraiser! Read more information here. VENUE SIERRA POINT MARINA 500 Sierra Point Pkwy  Brisbane, CA 94005 United States ABOUT This is a rain or shine event. The 5K run and 1K Kids Fun Run will both […]