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Support the STAT Act, H.R. 1730/S. 670!

You are a critical piece of the legislative process. You can make a difference by making your voice heard by your senators and representatives. The Speeding Therapy Access Today, or STAT Act, H.R. 1730/S. 670, is a bipartisan bill that was created with the input of the rare disease community aimed at improving the development […]

Help us Shine a Spotlight on Coats’ Disease!

When doctors are not familiar with the symptoms of Coats’ Disease, this may lead to an incorrect diagnosis which delays treatment, or worse, leads to the removal of the eye. Recently, we announced our Travel Grant Program, a $10,000 fundraising effort that sends five (5) Pediatric Retina Fellows and Specialists to conferences this year, such as […]

What makes NFL player Olivier Vernon support our Foundation?

Thank you to New York Giants’ Olivier Vernon for supporting the Jack McGovern Coats’ Disease Foundation through My Cause, My Cleats. His continued support year after year is helping to raise awareness of Coats’ Disease! If you can, please take a minute to read this article about why our Foundation is close to his heart. […]

January 2019 Newsletter

Click here to download the January newsletter from the Jack McGovern Coats’ Disease Foundation! January 2019 Newsletter  

Happy New Year!

Happy New Year from the Jack McGovern Coats’ Disease Foundation! Dear Friends, As we reflect back on our efforts in 2018 to increase the impact of the Jack McGovern Coats’ Disease Foundation, we are so grateful for the support of our Coats’ families, friends, and patients around the globe! Together, we have made progress in […]

First Annual 5K/1K Cure Coats’ Run

Check out video from this past October’s 5k/1K Cure Coats’ Run! We can’t wait until next year’s event – stay tuned for more info!  

New Study Finds Orphan Drug Exclusivity Working as Intended

New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs

National Tissue Biobank – A message from the director, Dr. Akrit Sodhi

Hear Dr. Akrit Sodhi present the latest in research for finding a cure for Coats’ Disease The Jack McGovern Coats’ Disease Foundation Board is pleased to announce our continued commitment to fund the expenses related to tissue collection by donating $25,000 this year to the Wilmer Eye Institute, establishing the Jack McGovern Coats’ Disease Foundation […]

Coats’ Disease Infographic

The Jack McGovern Coats’ Disease Foundation’s goal is to increase awareness. We’ve put together some history, current statistics, and more information for you to easily spread awareness of this rare disease and help raise funds to meet our goal of finding a cure. Facts about Coats’ Disease   Jack McGovern Coats’ Disease Foundation Copyright 2018

Questions to Ask Your Doctor After You Are First Diagnosed With Coats’ Disease

Here at the Jack McGovern Coats’ Disease foundation, we receive a lot of emails from scared parents looking for answers about their children’s diagnosis. What type of treatment is best? Is this diagnosis of Coats’ Disease correct? Could Coats’ Disease be hereditary? Well, the only answers to those questions can come from your ophthalmologist and […]