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UPDATE YOUR INFORMATION: And, nominate others!

UPDATE YOUR INFORMATION: And, nominate others! ________ The Jack McGovern Coats’ Disease Foundation is proud to announce new updates to our website. Since 2006, the Foundation has made great strides in raising awareness and funding pivotal research to better understand and treat this rare disease. With our new website, we’ve introduced a range of new […]

1st Annual Cure Coats’ 5K Run & 1K Kids Fun Run

Join us on Sunday, October 21, 2018 at 9:00 a.m. at Sierra Point Marina in Brisbane, CA, for our first ever run/walk fundraiser! Read more information here. VENUE SIERRA POINT MARINA 500 Sierra Point Pkwy  Brisbane, CA 94005 United States ABOUT This is a rain or shine event. The 5K run and 1K Kids Fun Run will both […]

Protective Eye Wear

Protective Eye Wear   One of the first things that should happen when a patient is diagnosed with Coats’ Disease is the purchase of properly fitting protective eye wear. Doctors recommend that all patients, but particularly children, should wear protective eyewear – even if it means just wearing clear lenses – to prevent damage to […]

Coats’ Disease Infographic

The Jack McGovern Coats’ Disease Foundation’s goal is to increase awareness. We’ve put together some history, current statistics, and more information for you to easily spread awareness of this rare disease and help raise funds to meet our goal of finding a cure. Facts about Coats’ Disease   Jack McGovern Coats’ Disease Foundation Copyright 2018

Jack McGovern Coats’ Disease Foundation Donates Funds For Research

PRESS RELEASE Jack McGovern Coats’ Disease Foundation establishes national tissue biobank at the Wilmer Eye Institute at Johns Hopkins Non-profit donates funds to support research on rare eye disorder that causes blindness. Burlingame, CA, January 5, 2018:  The Jack McGovern Coats’ Disease Foundation, a charitable organization that seeks to find a cure for a rare […]

Eagle-Eyed Facebook Users Contributed to Diagnosis a Little Girl with Coats’ Disease

Recently, Coats’ Disease has received some national attention. Good Morning America, the NY Daily News, and ABC News all shared the story of a little girl who discovered a diagnosis of Coats’ Disease through a Facebook photo that her mom posted. When Tara Taylor posted a photograph of her 3-year-old daughter on Facebook, her friends informed her […]

Coats Disease Awareness Day in California is on August 17th

California State Senator Jerry Hill has introduced a State Senate Resolution (SR 40) to designate August 17th as Coats Disease Awareness Day in California. The Resolution urges and supports all efforts to raise “awareness of this disease, promote and enable early detection and advance treatments, achieve prevention, further scientific research, and find a cure for this […]

A year in review: 2014

We would like to say the warmest thank you for supporting us in 2014 and always. As we reflect on the past year, we are very optimistic about the strides we have made toward a cure for Coats Disease. We wanted to share some of the great highlights with you! We hosted our most successful […]

Rare Disease Day: 2015

Eurodis, the voice of Rare Disease in Europe, marks the last day of February of each year as “Rare Disease Awareness Day”. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Coats Disease impacts patients lives in a […]

Questions to Ask Your Doctor After You Are First Diagnosed With Coats’ Disease

Here at the Jack McGovern Coats’ Disease foundation, we receive a lot of emails from scared parents looking for answers about their children’s diagnosis. What type of treatment is best? Is this diagnosis of Coats’ Disease correct? Could Coats’ Disease be hereditary? Well, the only answers to those questions can come from your ophthalmologist and […]