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Ask Congress to Support Newborn Screening!

Help Save Thousands of Babies! Thousands of babies are identified each year through newborn screening as having a condition that could cause serious harm if not caught and treated immediately. While states administer these programs, federal agencies do an incredible amount of work to improve and expand these programs. However, this work will stop in […]

Help us Shine a Spotlight on Coats’ Disease!

When doctors are not familiar with the symptoms of Coats’ Disease, this may lead to an incorrect diagnosis which delays treatment, or worse, leads to the removal of the eye. Recently, we announced our Travel Grant Program, a $10,000 fundraising effort that sends five (5) Pediatric Retina Fellows and Specialists to conferences this year, such as […]

Scientific Advisory Board Announcement

JACK MCGOVERN COATS’ DISEASE FOUNDATION ESTABLISHES SCIENTIFIC ADVISORY BOARD Top pediatric retinal specialists and researchers named to newly formed Scientific Advisory Board BURLINGAME, California – The Jack McGovern Coats’ Disease Foundation has announced the formation of a Scientific Advisory Board (SAB). The SAB is composed of top pediatric retinal specialists and researchers dedicated to improving […]

February 2019 Newsletter

February 2019 Newsletter

What makes NFL player Olivier Vernon support our Foundation?

Thank you to New York Giants’ Olivier Vernon for supporting the Jack McGovern Coats’ Disease Foundation through My Cause, My Cleats. His continued support year after year is helping to raise awareness of Coats’ Disease! If you can, please take a minute to read this article about why our Foundation is close to his heart. […]

January 2019 Newsletter

Click here to download the January newsletter from the Jack McGovern Coats’ Disease Foundation! January 2019 Newsletter  

Happy New Year!

Happy New Year from the Jack McGovern Coats’ Disease Foundation! Dear Friends, As we reflect back on our efforts in 2018 to increase the impact of the Jack McGovern Coats’ Disease Foundation, we are so grateful for the support of our Coats’ families, friends, and patients around the globe! Together, we have made progress in […]

First Annual 5K/1K Cure Coats’ Run

Check out video from this past October’s 5k/1K Cure Coats’ Run! We can’t wait until next year’s event – stay tuned for more info!  

New Study Finds Orphan Drug Exclusivity Working as Intended

New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs

NORD RareInsights™ Releases New Fact Sheet on the Orphan Drug Act

RareInsights is a NORD initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. The Orphan Drug Act (ODA) of 1983 is a federal law that incentivizes biopharmaceutical companies to develop drugs and biologics, know as “orphan drugs,” for individuals with rare diseases. Prior to the ODA, […]