Happy New Year!
Happy New Year from the Jack McGovern Coats’ Disease Foundation! Dear Friends, As we reflect back on our efforts in 2018 to increase the impact of the Jack McGovern Coats’ Disease Foundation, we are so grateful for the support of our Coats’ families, friends, and patients around the globe! Together, we have made progress in […]
New Study Finds Orphan Drug Exclusivity Working as Intended
New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs
NORD RareInsights™ Releases New Fact Sheet on the Orphan Drug Act
RareInsights is a NORD initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. The Orphan Drug Act (ODA) of 1983 is a federal law that incentivizes biopharmaceutical companies to develop drugs and biologics, know as “orphan drugs,” for individuals with rare diseases. Prior to the ODA, […]
National Tissue Biobank – A message from the director, Dr. Akrit Sodhi
Hear Dr. Akrit Sodhi present the latest in research for finding a cure for Coats’ Disease The Jack McGovern Coats’ Disease Foundation Board is pleased to announce our continued commitment to fund the expenses related to tissue collection by donating $25,000 this year to the Wilmer Eye Institute, establishing the Jack McGovern Coats’ Disease Foundation […]
Here are some snapshots from our first annual Cure Coats’ 5K/1K Fun Run!
We are so proud of our first annual Cure Coats’ 5K/1K Fun Run this October! Congratulations to all of our medal winners, as well as a big THANK YOU to everyone who came out to run, walk, sponsor, volunteer, and do your part in finding a cure for Coats’ Disease! Here are some pictures from […]
UPDATE YOUR INFORMATION: And, nominate others!
UPDATE YOUR INFORMATION: And, nominate others! ________ The Jack McGovern Coats’ Disease Foundation is proud to announce new updates to our website. Since 2006, the Foundation has made great strides in raising awareness and funding pivotal research to better understand and treat this rare disease. With our new website, we’ve introduced a range of new […]