New Study Finds Orphan Drug Exclusivity Working as Intended
New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs
NORD RareInsights™ Releases New Fact Sheet on the Orphan Drug Act
RareInsights is a NORD initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. The Orphan Drug Act (ODA) of 1983 is a federal law that incentivizes biopharmaceutical companies to develop drugs and biologics, know as “orphan drugs,” for individuals with rare diseases. Prior to the ODA, […]
National Tissue Biobank – A message from the director, Dr. Akrit Sodhi
Hear Dr. Akrit Sodhi present the latest in research for finding a cure for Coats’ Disease The Jack McGovern Coats’ Disease Foundation Board is pleased to announce our continued commitment to fund the expenses related to tissue collection by donating $25,000 this year to the Wilmer Eye Institute, establishing the Jack McGovern Coats’ Disease Foundation […]
Here are some snapshots from our first annual Cure Coats’ 5K/1K Fun Run!
We are so proud of our first annual Cure Coats’ 5K/1K Fun Run this October! Congratulations to all of our medal winners, as well as a big THANK YOU to everyone who came out to run, walk, sponsor, volunteer, and do your part in finding a cure for Coats’ Disease! Here are some pictures from […]
UPDATE YOUR INFORMATION: And, nominate others!
UPDATE YOUR INFORMATION: And, nominate others! ________ The Jack McGovern Coats’ Disease Foundation is proud to announce new updates to our website. Since 2006, the Foundation has made great strides in raising awareness and funding pivotal research to better understand and treat this rare disease. With our new website, we’ve introduced a range of new […]
1st Annual Cure Coats’ 5K Run & 1K Kids Fun Run
Join us on Sunday, October 21, 2018 at 9:00 a.m. at Sierra Point Marina in Brisbane, CA, for our first ever run/walk fundraiser! Read more information here. VENUE SIERRA POINT MARINA 500 Sierra Point Pkwy Brisbane, CA 94005 United States ABOUT This is a rain or shine event. The 5K run and 1K Kids Fun Run will both […]
Protective Eye Wear
Protective Eye Wear One of the first things that should happen when a patient is diagnosed with Coats’ Disease is the purchase of properly fitting protective eye wear. Doctors recommend that all patients, but particularly children, should wear protective eyewear – even if it means just wearing clear lenses – to prevent damage to […]