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Eagle-Eyed Facebook Users Contributed to Diagnosis a Little Girl with Coats’ Disease

Recently, Coats’ Disease has received some national attention. Good Morning America, the NY Daily News, and ABC News all shared the story of a little girl who discovered a diagnosis of Coats’ Disease through a Facebook photo that her mom posted. When Tara Taylor posted a photograph of her 3-year-old daughter on Facebook, her friends informed her […]


Coats Disease Awareness Day in California is on August 17th

California State Senator Jerry Hill has introduced a State Senate Resolution (SR 40) to designate August 17th as Coats Disease Awareness Day in California. The Resolution urges and supports all efforts to raise “awareness of this disease, promote and enable early detection and advance treatments, achieve prevention, further scientific research, and find a cure for this […]


A year in review: 2014

We would like to say the warmest thank you for supporting us in 2014 and always. As we reflect on the past year, we are very optimistic about the strides we have made toward a cure for Coats Disease. We wanted to share some of the great highlights with you! We hosted our most successful […]


Rare Disease Day: 2015

Eurodis, the voice of Rare Disease in Europe, marks the last day of February of each year as “Rare Disease Awareness Day”. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Coats Disease impacts patients lives in a […]


Questions to Ask Your Doctor After You Are First Diagnosed With Coats’ Disease

Here at the Jack McGovern Coats’ Disease foundation, we receive a lot of emails from scared parents looking for answers about their children’s diagnosis. What type of treatment is best? Is this diagnosis of Coats’ Disease correct? Could Coats’ Disease be hereditary? Well, the only answers to those questions can come from your ophthalmologist and […]


Genentech Study is Analyzing the DNA of Over 100 Samples of Coats’ Disease Patients and Their Families

Many diseases in the human body result from changes in our DNA, and follow patterns of transmission from parent to offspring known as Mendelian genetics. Gregor Mendel was the Austrian monk who studied genetics in plants and realized that some genes are transmitted in a dominant or recessive fashion. Since that time, other forms or […]


Interview: G. Baker Hubbard III, MD

G. Baker Hubbard III, MD specializes in vitreoretinal surgery, and his practice includes both adult and pediatric vitreoretinal disorders. Dr. Hubbard’s primary research interest is in characterizing the clinical manifestations of pediatric retinal disorders and their treatment outcomes. He is a practicing Professor of Ophthalmology at the Emory University School of Medicine. You can reach him through […]


Facebook Groups to Help You Connect to a Larger Network of Coats Disease Families

The power of the internet to connect patient families of Coats’ Disease is something that is an important value for our foundation. On our Facebook page, we meet, connect with and share breaking news about Coats Disease with our community. There are plenty of resources we recommend new patients or parents of children with Coats’ Disease […]


Foundations and Resources for Coats’ Disease Families

The Jack McGovern Coats’ Disease Foundation was founded in 2006 with a specific focus and mission: to raise funds in support of ongoing research initiatives to one day find the cause and cure of Coats’ Disease. That has manifested into connecting doctors to one another by way of our regular medical conferences and through direct […]


What you need to know about Avastin injections for Coats’ Disease

This information is provided to us by our Board Member and medical advisor, Dr. Arthur Fu of West Coast Retina. What is Avastin? Avastin is also known as Bevacizumab and is made by Genentech. This drug is a special medicine that blocks a receptor found on blood vessels, known as vascular endothelial growth factor (VEGF), that […]