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May Newsletter

Click here to read the latest news from the Jack McGovern Coats’ Disease Foundation!


Let’s Make Coats’ Disease Awareness Day a National Day of Recognition!

Several years ago, Coats’ parent, Elke Gibbs Namola, led a successful campaign in Virginia to have August 17 recognized as Coats’ Disease Awareness Day. As a result, Virginia joined California, Jack McGovern’s home state, as the only two states in the country with this recognition. Elke has now taken on the challenge to move this […]


𝗡𝗢𝗥𝗗 𝗟𝗮𝘂𝗻𝗰𝗵𝗲𝘀 𝗙𝗶𝗻𝗮𝗻𝗰𝗶𝗮𝗹 𝗔𝘀𝘀𝗶𝘀𝘁𝗮𝗻𝗰𝗲 𝗣𝗿𝗼𝗴𝗿𝗮𝗺 𝗳𝗼𝗿 𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝗠𝗲𝗺𝗯𝗲𝗿𝘀 𝗜𝗺𝗽𝗮𝗰𝘁𝗲𝗱 𝗯𝘆 𝗖𝗢𝗩𝗜𝗗-𝟭𝟵

𝗡𝗢𝗥𝗗 𝗟𝗮𝘂𝗻𝗰𝗵𝗲𝘀 𝗙𝗶𝗻𝗮𝗻𝗰𝗶𝗮𝗹 𝗔𝘀𝘀𝗶𝘀𝘁𝗮𝗻𝗰𝗲 𝗣𝗿𝗼𝗴𝗿𝗮𝗺 𝗳𝗼𝗿 𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝗠𝗲𝗺𝗯𝗲𝗿𝘀 𝗜𝗺𝗽𝗮𝗰𝘁𝗲𝗱 𝗯𝘆 𝗖𝗢𝗩𝗜𝗗-𝟭𝟵 Dear Coats’ Community, As a member of the National Organization of Rare Disorders (NORD), we are pleased to share a new initiative from NORD for rare disease patients impacted by COVID-19. Please read on for more information! NORD’s COVID-19 Critical Relief Program […]


Read the April 2020 Newsletter!

            Click here to read the April 2020 newsletter!


A Status Update and Resources for the Coats’ Community

https://bit.ly/StatusUpdateandResources   Dear Coats’ Patients, Parents, and Friends, The past month has certainly been an unsettling and stressful time! We at the Jack McGovern Coats’ Disease Foundation want to check in with you and assure you that we are well-positioned to carry on our work to find a cure for Coats’ Disease patients around the world. With […]


Sign up today for the Coats’ Disease Patient and Parent Directory

Have you been looking to connect with fellow Coats’ patients and their families in your area? The Jack McGovern Coats’ Disease Foundation is pleased to announce the development of a Coats’ Disease Patient and Parent Directory! This global directory is optional for inclusion and seeks to provide Coats’ patients and their families a way to connect […]


Register Today for the 14th Annual Golf Outing and Dinner!

Our annual golf tournament and dinner is our biggest fundraiser of the year. Please mark your calendar for Friday, August 21, 2020, and plan to come out and join the festivities!     Sponsorship opportunities are available! To download the sponsorship form, please click here.    


Read the latest news from the Foundation!

Visit our monthly newsletters page to check out the latest news from us! Monthly Newsletters


2019 Year In Review

As we look ahead to 2020, we wish to extend our profound appreciation to all of you in the Coats’ Community – family, friends, supporters, parents, patients, ophthalmologists, and volunteers – who have contributed so much over the years to raise awareness, support research, and provide valuable resources to Coats’ Disease patients and their families. […]


Photos from the 2nd Annual Cure Coats’ 5K/1K

Thank you to everyone who participated, supported, sponsored, and volunteered for our 2nd annual Cure Coats’ 5K/1K this year! The event was a huge success and we are already looking forward to next year!