Blog

  • Select categories:

NORD RareInsights™ Releases New Fact Sheet on the Orphan Drug Act

RareInsights is a NORD initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. The Orphan Drug Act (ODA) of 1983 is a federal law that incentivizes biopharmaceutical companies to develop drugs and biologics, know as “orphan drugs,” for individuals with rare diseases. Prior to the ODA, […]


National Tissue Biobank – A message from the director, Dr. Akrit Sodhi

Hear Dr. Akrit Sodhi present the latest in research for finding a cure for Coats’ Disease The Jack McGovern Coats’ Disease Foundation Board is pleased to announce our continued commitment to fund the expenses related to tissue collection by donating $25,000 this year to the Wilmer Eye Institute, establishing the Jack McGovern Coats’ Disease Foundation […]


Beacon of Hope

US Lacrosse Magazine recently shared Jack’s journey with Coats’ Disease in their November issue   You can read the article here!    


Here are some snapshots from our first annual Cure Coats’ 5K/1K Fun Run!

We are so proud of our first annual Cure Coats’ 5K/1K Fun Run this October! Congratulations to all of our medal winners, as well as a big THANK YOU to everyone who came out to run, walk, sponsor, volunteer, and do your part in finding a cure for Coats’ Disease!  Here are some pictures from […]


Images from the 2018 Golf Tournament

Check out photos from the 2018 Jack McGovern Coats’ Disease Foundation Golf Tournament! Thank you to all who joined us on August 23, 2018 in the fight in finding a cure for Coats’ Disease!


UPDATE YOUR INFORMATION: And, nominate others!

UPDATE YOUR INFORMATION: And, nominate others! ________ The Jack McGovern Coats’ Disease Foundation is proud to announce new updates to our website. Since 2006, the Foundation has made great strides in raising awareness and funding pivotal research to better understand and treat this rare disease. With our new website, we’ve introduced a range of new […]


1st Annual Cure Coats’ 5K Run & 1K Kids Fun Run

Join us on Sunday, October 21, 2018 at 9:00 a.m. at Sierra Point Marina in Brisbane, CA, for our first ever run/walk fundraiser! Read more information here. VENUE SIERRA POINT MARINA 500 Sierra Point Pkwy  Brisbane, CA 94005 United States ABOUT This is a rain or shine event. The 5K run and 1K Kids Fun Run will both […]


Protective Eye Wear

Protective Eye Wear   One of the first things that should happen when a patient is diagnosed with Coats’ Disease is the purchase of properly fitting protective eye wear. Doctors recommend that all patients, but particularly children, should wear protective eyewear – even if it means just wearing clear lenses – to prevent damage to […]


Coats’ Disease Infographic

The Jack McGovern Coats’ Disease Foundation’s goal is to increase awareness. We’ve put together some history, current statistics, and more information for you to easily spread awareness of this rare disease and help raise funds to meet our goal of finding a cure. Facts about Coats’ Disease   Jack McGovern Coats’ Disease Foundation Copyright 2018


Jack McGovern Coats’ Disease Foundation Donates Funds For Research

PRESS RELEASE Jack McGovern Coats’ Disease Foundation establishes national tissue biobank at the Wilmer Eye Institute at Johns Hopkins Non-profit donates funds to support research on rare eye disorder that causes blindness. Burlingame, CA, January 5, 2018:  The Jack McGovern Coats’ Disease Foundation, a charitable organization that seeks to find a cure for a rare […]