What makes NFL player Olivier Vernon support our Foundation?
Thank you to New York Giants’ Olivier Vernon for supporting the Jack McGovern Coats’ Disease Foundation through My Cause, My Cleats. His continued support year after year is helping to raise awareness of Coats’ Disease! If you can, please take a minute to read this article about why our Foundation is close to his heart. […]
January 2019 Newsletter
Click here to download the January newsletter from the Jack McGovern Coats’ Disease Foundation! January 2019 Newsletter
Happy New Year!
Happy New Year from the Jack McGovern Coats’ Disease Foundation! Dear Friends, As we reflect back on our efforts in 2018 to increase the impact of the Jack McGovern Coats’ Disease Foundation, we are so grateful for the support of our Coats’ families, friends, and patients around the globe! Together, we have made progress in […]
First Annual 5K/1K Cure Coats’ Run
Check out video from this past October’s 5k/1K Cure Coats’ Run! We can’t wait until next year’s event – stay tuned for more info!
New Study Finds Orphan Drug Exclusivity Working as Intended
New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs
NORD RareInsights™ Releases New Fact Sheet on the Orphan Drug Act
RareInsights is a NORD initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. The Orphan Drug Act (ODA) of 1983 is a federal law that incentivizes biopharmaceutical companies to develop drugs and biologics, know as “orphan drugs,” for individuals with rare diseases. Prior to the ODA, […]
National Tissue Biobank – A message from the director, Dr. Akrit Sodhi
Hear Dr. Akrit Sodhi present the latest in research for finding a cure for Coats’ Disease The Jack McGovern Coats’ Disease Foundation Board is pleased to announce our continued commitment to fund the expenses related to tissue collection by donating $25,000 this year to the Wilmer Eye Institute, establishing the Jack McGovern Coats’ Disease Foundation […]
Beacon of Hope
US Lacrosse Magazine recently shared Jack’s journey with Coats’ Disease in their November issue You can read the article here! PDF Version
Here are some snapshots from our first annual Cure Coats’ 5K/1K Fun Run!
We are so proud of our first annual Cure Coats’ 5K/1K Fun Run this October! Congratulations to all of our medal winners, as well as a big THANK YOU to everyone who came out to run, walk, sponsor, volunteer, and do your part in finding a cure for Coats’ Disease! Here are some pictures from […]
