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Mary Elizabeth Hartnett, M.D. joins the Board of the Directors of the Jack McGovern Coats’ Disease Foundation.

Contact: Deborah Marron, Ed.D. [email protected] 888.314.8853 Press Release Mary Elizabeth Hartnett, M.D. joins the Board of the Directors of the Jack McGovern Coats’ Disease Foundation. Esteemed retina specialist and academic begins her term as a Director with the nation’s sole nonprofit that focuses on Coats’ Disease awareness and research. Burlingame, CA, March 1, 2021:  The […]


Support the STAT Act, H.R. 1730/S. 670!

You are a critical piece of the legislative process. You can make a difference by making your voice heard by your senators and representatives. The Speeding Therapy Access Today, or STAT Act, H.R. 1730/S. 670, is a bipartisan bill that was created with the input of the rare disease community aimed at improving the development […]


14th Annual Golf Outing (2020) Photo Album

We were so grateful to be able to host our 14th Annual Golf Tournament this year! A bit THANK YOU to the Golfers, sponsors, and donors who made this event a success. Photo Credit: Steve Disenhof


2020 Cure Coats’ Virtual 5K Celebration and Fundraiser

We are very grateful for the support shown during our Virtual Celebration and Fundraising event! If you weren’t able to attend (or simply want to watch the magic again!), here is the replay of the evening.  


2020 Cure Coats’ Virtual 5K Photo Album


I Fight Coats’ Disease. What’s Your Superpower?

Coats’ kids are AMAZING! And so are the people who support them in their lifelong journey living with this rare disease. We think all Coats’ patients, their families, and doctors are superheroes!  Let’s share it with the world! When you purchase a t-shirt, you will be supporting the Jack McGovern Coats’ Disease Foundation and spreading […]


May Newsletter

Click here to read the latest news from the Jack McGovern Coats’ Disease Foundation!


Let’s Make Coats’ Disease Awareness Day a National Day of Recognition!

Several years ago, Coats’ parent, Elke Gibbs Namola, led a successful campaign in Virginia to have August 17 recognized as Coats’ Disease Awareness Day. As a result, Virginia joined California, Jack McGovern’s home state, as the only two states in the country with this recognition. Elke has now taken on the challenge to move this […]


Read the April 2020 Newsletter!

            Click here to read the April 2020 newsletter!


A Status Update and Resources for the Coats’ Community

https://bit.ly/StatusUpdateandResources   Dear Coats’ Patients, Parents, and Friends, The past month has certainly been an unsettling and stressful time! We at the Jack McGovern Coats’ Disease Foundation want to check in with you and assure you that we are well-positioned to carry on our work to find a cure for Coats’ Disease patients around the world. With […]