President’s Letter To The Coats’ Community

Dear Friends,

It is my great pleasure to serve as the new President of the Jack McGovern Coats’ Disease Foundation. As we move into our 12th year, I am excited to share with you our accomplishments of 2017 and our goals for 2018.

I am proud to report that during the past year, the Foundation:

  • Donated funds to the Wilmer Eye Institute at Johns Hopkins Hospital to establish the Jack McGovern Coats’ Disease Foundation National Tissue Biobank which will facilitate and encourage further research on Coats’ Disease
  • Continued to serve as the preeminent resource for the Coats’ Community
  • Launched a patient registry to make invaluable data available to researchers
  • Hired the Foundation’s first Executive Director
  • Supported Genentech’s ongoing research into the cause of Coats’ Disease

It is because of the generous support of people like you, that we have achieved what we have and are able to offer hope and resources to so many who wait for a cure for themselves or a loved one.  As we move forward in 2018, we will expand our efforts across the country and around the world, we will engage the Coats’ Community in our activities, launch a new website, encourage more researchers to examine Coats’ Disease, involve volunteers in raising awareness of Coats’ Disease, and offer more opportunities to raise funds for research.

Please stay tuned for more communications about upcoming initiatives. To learn how you can support our efforts through donating or volunteering, visit our website at

Thank you very much for your support!



Suzanne C. Levere, President
Jack McGovern Coats’ Disease Foundation