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Dear Coats’ Community,

As a member of the National Organization of Rare Disorders (NORD), we are pleased to share a new initiative from NORD for rare disease patients impacted by COVID-19. Please read on for more information!

NORD’s COVID-19 Critical Relief Program provides much-needed financial assistance to members of the rare community affected by the COVID-19 pandemic. This program is designed to provide assistance to the rare disease patient who has been directly impacted by the COVID-19 pandemic.(i.e. job loss, reduced work hours, quarantine, etc.).

The COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund provides eligible individuals impacted by the COVID-19 pandemic with financial assistance for unexpected or emergency essential expenses, including:

· Unexpected utility expenses;
· Communication expenses (e.g. phone, cell phone, internet);
· Emergency repairs to car, furnace, home or major appliances;
· Assistance with travel and/or lodging logistics and expenses;
· Rent or mortgage payment assistance;
· Support for adaptive learning during school closures.

Patients must have a confirmed rare disease diagnosis and meet additional eligibility criteria. The need for which assistance is being sought must also meet the critical needs, non-medical essential criteria.

For more information on the NORD COVID-19 Critical Relief Program or to apply, please contact NORD by telephone at 203.242.0497, via email at [email protected], or visit www.rarediseases.org.

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