Mailo

My soon to be 5-year-old son, Mailo, was diagnosed with Coats’ Disease a few weeks ago during a routine eye exam. He’s been wearing glasses since the age of three for minor shortsightedness, which runs in the family. The affected blood vessels are not near his main optic nerve so he never had any symptoms […]


Shaye

Hi, my name is Shaye and I am six years old. From around age three my mum and dad noticed I was a bit wobbly on my feet and was always tripping over. I got sent for hearing tests and occupational therapy (even physio) to rule out any issues that could be causing this. No […]


Francesca

My name is Francesca Mulhall and I have Coats’ Disease. When I was 10 years old, I noticed there was something wrong with my left eye. At first I thought nothing of it until I saw it again. I knew something was wrong. I was going blind in my eye. I had said it to […]


Andrew

My name is Andrew and I was diagnosed with Coats’ Disease when I was four-years-old. Growing up, I never particularly liked how it made me visibly different and set me aside from other kids, but I’ve tried my hardest to never let it get in the way of the things I wanted to accomplish. It […]


Brian

I was diagnosed with Coat’s Disease when I was 14 years old, very traumatic at that age, but as time passed, I became more accustomed with the situation. I learned to drive at 17 and 6 months later passed the driving test and was retained in employment with a local bakery as a driver/salesman. No […]


Javon

This is Javon. This picture was taken at his 6th grade promotion. People were telling me that it was the way he was looking at the camera but I was not comfortable with that. So, I took him to his Doctor and then was referred to the specialist. His vision in his left eye when […]


Jacob

On May 6, 2015 we welcomed beautiful twin boys into the world – Jacob and Elijah. About 6 months later, we started to notice Jacob’s right eye was drifting. Thinking it was a lazy eye that just needed to be patched, I made an appointment with the ophthalmologist. On December 7, 2015 at what I […]


Braeden

Braeden’s Story: My son Braeden failed his eye screening in kindergarten. We took him to get his eyes rechecked and was told he just needed glasses. Then, in first grade, he failed his screening again. This time I took him to a different eye doctor. She noticed that he was colorblind in one eye. I […]


Caleb

Caleb’s Story: My son lost his left eye on March 8, 2018 after being diagnosed with Coats’ Disease on January 12, 2018. Below is his video we made for local news channels of Caleb’s story when they learned he was the first boy in Florida to lose his eye to a disease that is too […]


Trystn

Trystn’s Story: Last year during a school physical, I got a letter in the mail that Trystn failed his eye test in one eye, mainly stating that it was a little lazy. We didn’t have health insurance at the time, and I did see it as a big deal. Well, I was on Facebook and […]