Oliver

This is Oliver. He is 4 years old and is diagnosed stage 3 Coats’ Disease. We live in sunny Queensland, Australia. Oliver actively participates in martial arts, bjj, gymnastics, and swimming. It’s hard to determine when his Coats’ journey truly began, but I started noticing at age 2 one of his eyes sometimes inverted. I […]


Giovanni

When Giovanni was 2 months old, I sensed something was off with his left eye. I would occasionally catch the eye drifting, and others just couldn’t see it. Everyone thought I was a crazy first-time mom. When I expressed my concerns to his pediatrician, he told us that Giovanni’s eyes were fine, and they were […]


Riggs

At Riggs’ 2-year-old check up in September 2018 he was flagged for having a “weak” right eye that seemed slightly lazy. Our pediatrician assured us that it’s just a phase but referred us to an eye doctor to be safe. Riggs’ eye doctor determined that he was farsighted and did have a lazy eye. He […]


Averie

My daughter, Averie, was diagnosed with Coats’ Disease at the age of four. I noticed that there was a glare in one of her eyes when I would take her picture. I came across a Facebook article that gave the warning signs for eye conditions related to the glare. I decided to take my daughter […]


Mailo

My soon to be 5-year-old son, Mailo, was diagnosed with Coats’ Disease a few weeks ago during a routine eye exam. He’s been wearing glasses since the age of three for minor shortsightedness, which runs in the family. The affected blood vessels are not near his main optic nerve so he never had any symptoms […]


Shaye

Hi, my name is Shaye and I am six years old. From around age three my mum and dad noticed I was a bit wobbly on my feet and was always tripping over. I got sent for hearing tests and occupational therapy (even physio) to rule out any issues that could be causing this. No […]


Francesca

My name is Francesca Mulhall and I have Coats’ Disease. When I was 10 years old, I noticed there was something wrong with my left eye. At first I thought nothing of it until I saw it again. I knew something was wrong. I was going blind in my eye. I had said it to […]


Andrew

My name is Andrew and I was diagnosed with Coats’ Disease when I was four-years-old. Growing up, I never particularly liked how it made me visibly different and set me aside from other kids, but I’ve tried my hardest to never let it get in the way of the things I wanted to accomplish. It […]


Brian

I was diagnosed with Coat’s Disease when I was 14 years old, very traumatic at that age, but as time passed, I became more accustomed with the situation. I learned to drive at 17 and 6 months later passed the driving test and was retained in employment with a local bakery as a driver/salesman. No […]


Javon

This is Javon. This picture was taken at his 6th grade promotion. People were telling me that it was the way he was looking at the camera but I was not comfortable with that. So, I took him to his Doctor and then was referred to the specialist. His vision in his left eye when […]