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Coats Disease Awareness Day in California is on August 17th

California State Senator Jerry Hill has introduced a State Senate Resolution (SR 40) to designate August 17th as Coats Disease Awareness Day in California. The Resolution urges and supports all efforts to raise “awareness of this disease, promote and enable early detection and advance treatments, achieve prevention, further scientific research, and find a cure for this […]

A year in review: 2014

We would like to say the warmest thank you for supporting us in 2014 and always. As we reflect on the past year, we are very optimistic about the strides we have made toward a cure for Coats Disease. We wanted to share some of the great highlights with you! We hosted our most successful […]

Rare Disease Day: 2015

Eurodis, the voice of Rare Disease in Europe, marks the last day of February of each year as “Rare Disease Awareness Day”. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Coats Disease impacts patients lives in a […]

Facebook Groups to Help You Connect to a Larger Network of Coats Disease Families

The power of the internet to connect patient families of Coats’ Disease is something that is an important value for our foundation. On our Facebook page, we meet, connect with and share breaking news about Coats Disease with our community. There are plenty of resources we recommend new patients or parents of children with Coats’ Disease […]

Foundations and Resources for Coats’ Disease Families

The Jack McGovern Coats’ Disease Foundation was founded in 2006 with a specific focus and mission: to raise funds in support of ongoing research initiatives to one day find the cause and cure of Coats’ Disease. That has manifested into connecting doctors to one another by way of our regular medical conferences and through direct […]

Letter from our Founder: A Look Into The Future

It is with pride and renewed energy to find the cure for Coats Disease that I write to my fellow patient families, donors, and friends of JMCDF. Thank you for taking time to read on. Did you know that a majority of Americans fear losing their eyesight more than any of their other senses? As […]

Help us build the first and only Coats’ Disease Patient Registry

At JMCDF, our mission is to enable new insights into the study of Coats’ Disease as we continue to push the ball forward towards finding a cure. Over the past 10 years, we have learned a lot about the medical research community and understand some of the challenges researchers face when looking to study the […]

Help us fund the National Tissue Bank for Coats Disease with the Wilmer Eye Institute

In addition to our major efforts towards finding a cure – the Genentech Study and the newly established Patient Registry — we are excited to announce the Jack McGovern Coats Disease Foundation National Tissue Biobank in partnership with the Wilmer Eye Institute. The prestigious Johns Hopkins Wilmer Eye Institute has applied to JMCDF for a grant to build the […]